![]() They have called for Disney to withdraw the movie and want the studio to raise awareness of the condition. McGuire's letter has already done the rounds and a group of parents backed by the Immune Deficiency Foundation has just launched a letter-writing campaign to newspapers. Nonetheless Disney can expect a lot more controversy in the weeks to come. Essentially, children with SCID lack the ability to produce an immune system. SCID is often called bubble boy disease, made known by the 1976 movie The Boy in the Plastic Bubble. Although patients are no longer confined to an actual bubble an intensive treatment regime forces them to lead restrictive lifestyles.Ī Disney executive who preferred to remain anonymous told Reuters that the film was not intended to poke fun at PI patients, adding: "The bubble is the set-up for a road trip comedy. Severe combined immunodeficiency (SCID) is very rare, genetic disorder, affecting between 50 and 100 children born in the U.S. McGuire is one of around half a million children who are diagnosed with primary immunodeficiency (PI) disease, which leaves them highly susceptible to infection. It would make me really sad to think while I am at the hospital, lots of people are sitting in a movie theater laughing about a serious disease." ![]() ![]() "I spend many hours a month getting transfusions at the hospital so I can try to stay healthy. "It's called a comedy, but we don't think it's funny to make jokes about serious diseases," fumed Scott McGuire. One 10-year-old was so incensed he wrote to studio head Michael Eisner.
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